“I wish I didn’t have special muscles,” Brendan said to me as I struggled to pull both him and his younger brother through the Farmers Market, with…… Read more ““I wish I didn’t have special muscles…””
Category: duchenne
Light in the Darkness
Sometimes, I am keenly aware that my writing, processing, thinking, and speaking tends towards the dark, the haggard, and the grief-slog of day-in-day-out challenges. Often the things…… Read more “Light in the Darkness”
Can’t go on, must go on
What do I mean when I say this, and what difference does it make for me and for others? “Can’t go on, must go on” is a…… Read more “Can’t go on, must go on”
Quite literally, Ups and Downs
I entitled this piece for a reason. I’ve been thinking a lot about tempering lately. I think there used to be a time when I felt it…… Read more “Quite literally, Ups and Downs”
“Coping” as a couple
I like this photo, because it was taken in a good moment. I can’t even say, a good day, because our ebbing and flowing these days does…… Read more ““Coping” as a couple”
Nathan Bettger | Oshkosh, WI 