“I wish I didn’t have special muscles,” Brendan said to me as I struggled to pull both him and his younger brother through the Farmers Market, with…… Read more ““I wish I didn’t have special muscles…””
Category: family
Light in the Darkness
Sometimes, I am keenly aware that my writing, processing, thinking, and speaking tends towards the dark, the haggard, and the grief-slog of day-in-day-out challenges. Often the things…… Read more “Light in the Darkness”
“Coping” as a couple
I like this photo, because it was taken in a good moment. I can’t even say, a good day, because our ebbing and flowing these days does…… Read more ““Coping” as a couple”
Dad’s Duchenne Top Ten
Duchenne (pronounced due – SHEN) muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness.DMD is caused by an absence of dystrophin, a protein…… Read more “Dad’s Duchenne Top Ten”
…And then we discovered our son has a fatal genetic disease
Duchenne. The first time I ever heard the word was when Kat, sitting next to me on the couch, covered her mouth and gasped. “Oh no,” I…… Read more “…And then we discovered our son has a fatal genetic disease”
