“Stuff” wasn’t really the word he used. “Let other people say the hopeful shit” was what he said. “You can leave that to them, and then sometimes…… Read more ““Let other people say the hopeful stuff””
Category: duchenne
Dad’s Duchenne Top Ten
Duchenne (pronounced due – SHEN) muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness.DMD is caused by an absence of dystrophin, a protein…… Read more “Dad’s Duchenne Top Ten”
…And then we discovered our son has a fatal genetic disease
Duchenne. The first time I ever heard the word was when Kat, sitting next to me on the couch, covered her mouth and gasped. “Oh no,” I…… Read more “…And then we discovered our son has a fatal genetic disease”