What do I mean when I say this, and what difference does it make for me and for others? “Can’t go on, must go on” is a mantra for the moment to moment mourners, the grief-learners, the ones who journey daily through slivers of light and stretches of shadow. To live in this awareness or to remind myself of this is to learn that there are times in life, sometimes daily where I need to be honest about two things: one, that there is more than enough heartbreak and trouble to go around and it is real and it hurts like hell; and two, that my place is to keep putting one foot in front of the other and walk with wonder and fullness in this heartbreak.
“Can’t go on, must go on” is not a declaration of self-pity. It is not depression, nor is it desperation. It is the look I see in the eyes of people day after day after day who courageously lean into their own sickness or the trouble of those whom they love dearly. These words are words of the lean-in, the hold-to, the push-forward, the hang-on to something… anything.
But most people don’t say the words. I see it but I don’t hear it. And some stop half way. “I can’t go on, and I won’t go on” is expressed often and it truly is a dark day, when someone stops there, especially when it doesn’t have to be true.
“I can go on, and I must go on.” This, too, doesn’t carry any weight, and often in many ways is heartbreaking in itself. No… ultimately you can’t go on. Or you won’t go on. Listen to what they are telling you. As Brendan told me yesterday, “Nothing lives forever, Dad.” Thank you, six-year-old chaplain’s son, thank you.
If we want to learn compassion, learn to have joy, to witness ourselves expanding both up AND down, words like these need to be said among us. Words like these need to be felt deep into our beings. I feel like I am at the end. I feel like I can’t take any more. I’ve got nothing left and I can’t cope with one more stress/tragedy/heartbreak. I can’t go on… and yet… I know this is not the end. There are still things for me to do. The world, my home, my land, my people, they need me. I will call upon whatever strength I might have and whatever strength I am given by the mysterious out-there/in-here. Divine Life will enliven my spirit and/or my body… to take one more breath… until there are are no breaths left and my spirit and my body will enliven others. Even then, we go on. Nothing is lost. Everything comes from somewhere.
“Transcript” from a talk I did. Another from the series is on Dying well.
What I want to do today is get into winter. Really get into it. Last week we talked about our dying time and how we might see it as one of the most important things in our life we can undertake. I received a question, “How do you help?” Tied with it is another question, “Do we have a choice in how we die?” While I don’t think we have a choice in what we die FROM, I do think many of us, if we are so lucky, will INDEED have a choice as to how we die… or another way I would answer this is that we have a choice in WHO WE ARE WHEN WE DIE. Does that make sense?
So who we ARE, at our own dying time and who we ARE when we are with others at their dying time really is how we help. This is how we HEAL and how we help others HEAL… and actually how we help the community and the EARTH heal, too. See it’s bigger than just us and our little lives! We help and are helped by getting into the NATURAL way of things. I said last week that dying happens to all healthy, mature, and connected to the Earth beings.
This is why I think reflecting on WINTER can be so helpful. Winter happens, well at least around here (not so much in California), every year, and it has happened for thousands and thousands of years. It is a necessary part of the cycle of life. The plants, the animals, the land, the water… they all depend on winter. Dormancy, hibernation, cold, death… these are part of the circle. And just as it happens to the Earth, so it happens to us. And our life cycle as well… birth/the new growth and becoming of spring, early adolescence/the fire, consumption, and excitement of summer, late adolescence and early adulthood/the shadows and mystery and preparation of fall… and adulthood to elderhood/the maturity, work, embracing, and then winding down of winter.
“December finds himself again a child
Even as he undergoes his age.
Cold and early darkness now descends,
Embracing sanctuaries of delight.
More and more he stares into the night,
Becoming less and less concerned with ends,
Emblem of the innocent as sage
Restored to wonder by what he must yield.”
~ Nicholas Gordon
But what does our modern world tell us is good? If you were to consider a season that gets highlighted more than any others, what would it be? Summer. Movies, music, adolescent culture. And is it reasonable to think that this then affects how we view the later part of life… or how we idealize certain aspects of the NATURAL way of things?
So what can we do? How can we live into winter more deeply? I want to take some time to talk about this as a group. But first a reflection or a letter to the garden in December.
“It is December in the garden,
an early winter here, with snow
already hiding my worst offenses —
the places I disturbed your moss
with my heavy boots; the corner
where I planted in too deep a hole
the now stricken hawthorne: crystals
hanging from its icy branches
are the only flowers it will know.
When did solitude become
mere loneliness and the sounds
of birds at the feeder seem
not like a calibrated music
but the discordant dialects
of strangers simply flying through?
I have tried to construct a life
alone here — coffee at dawn; a jog
through the chilling air
counting my heartbeats,
as if the doctor were my only muse;
books and bread and firewood —
those usual stepping-stones from month
to freezing month. but the constricted light,
the year closing down on itself with all
the vacancies of January ahead, leave me
unreconciled even to beauty.
When will you be coming back?”
– Linda Pastan, The Letter
What are some of the rituals that you find restorative, or that you might try, to make your way through the “winter?” Literal OR Figurative
“On the first day of winter,
the earth awakens to the cold touch of itself.
Snow knows no other recourse except
this falling, this sudden letting go
over the small gnomed bushes, all the emptying trees.
Snow puts beauty back into the withered and malnourished,
into the death-wish of nature and the deliberate way
winter insists on nothing less than deference.
waiting all its life, snow says, “Let me cover you.”
– Laura Lush, The First Day of Winter
This is a general summary of a talk I did at First Congregational Church in Oshkosh, WI on November 27th, 2016. It is part of a three part series on End of Life, Dying, and living into the seasons of Life.
We are going to be talking about dying and end of life. Please sit with that for a moment. What does it do to you? What feelings rise up in you as you consider the end of your life or the idea and reality of death?
There are a few things I do not know, a few things I do know, and a few things I have seen enough that I am very convinced of. What I do not know is what will happen after I die. I mean, really, how can I know this for certain?!? Yes, I guess there are stories of those who have died and come back. You can believe what you want to about them, but I’m not certain. What I do know is that death happens only once and it is as much a part of life as being born. It is literally woven into the fabric of the Earth. I also know that life itself is dependent on death. The very soil that feeds the plants that feed the animals and so on is made up of dead material. This gives me, as a Nature guy, significant meaning. My body is going to become compost one day and is going to give life to other living beings! This may not work for you. That’s ok. We each have our ways of making meaning of this experience, and that is what we are talking about.
The thing I am thoroughly convinced of is this: Over the course of our lives, we are putting together a story of what it is going to be like when it is our time. Both positive AND negative. Every experience we have affects how we will feel about our own death. So if we have loved ones who have died with pain and suffering or afraid and resentful, this is going into our consideration that this is what death will be like. If we have people we know who have died with grace, peace, and surrounded by those who they love, this will be added to our story. THIS is why how we go about our dying is perhaps THE most important thing in our entire lifespan that we can offer to those who come after us. This affects our community, our family, generations to come. Stories (the stories that future dying ones tell themselves) are told about us!
Stephen Jenkinson says that dying is never an individual event. Every death is a community event and it has ripples that extend farther than we can fathom. For generations to come and, depending on what you believe, from ancestors before. We get one chance to do it right… or I would say, well enough.
If you could put your experience into five words, how would you do that?
You’ll have to bear with me as I try to put these things in linear form. I am used to talking about these things with one person or a family and they come in response to their own story. Each idea comes with 45 minutes of dialog and our time is so limited here. So I am offering a few ideas and hoping some of them are helpful.
It used to be that people would die in the upstairs bedroom with family all around. It was more of a natural thing. But now it happens behind closed doors and the doctor comes out and tells the family that grandma has passed. So a lot of people don’t know what to expect and what might happen. The perspective you’ll get from a chaplain is much different perhaps than one you’d get from a doctor. I think we have to remember, and I tell patients this all the time, doctors are trained to heal. It is their mission to fix. I have seen there really is as much variety of feelings about end of life, and levels of comfortability, in doctors as there are in patients and families. You’d think that if a doctor is around death so often, they’d be more comfortable with it but this is not always true. But dying is not something to be fixed. I hear from medical staff, “So and so is depressed. She wants to die. Call the chaplain and get her some antidepressants.” But so often this is someone who is 95 years old and is all alone! I tell her she has every good reason to want to die. This is ok. Sometimes our spirits and our minds are ready to go but the body is hanging on.
Some people say we should live until we are dead. They don’t want to know about their dying. So they want to go out in their sleep or end their life prematurely. Stephen Jenkinson says it’s not the being dead they are afraid of but the dying. “How connected is someone to their life when they have to be told they are dying,” he says. I have said it before and will say it many times, dying happens to all health, mature, and connected to the Earth beings. It is a physical AND a spiritual experience and the more connected we are to the NATURAL way of things, the more we will be prepared for our own death. But that is the topic for the next talk.
I wish this were an easy answer, but unfortunately there are countless reasons why people have so much trouble dying. There are a few things that I am fairly certain about and that I have found that resonate with patients and family members. More often than not I find that people really DO have a difficulty with dying. Whether it be fear, denial, anxiety, or just avoidance, there is an underlying difficulty with dying.
Many people aren’t so much afraid of being dead, as they are of dying. I say this with intention, and I offer this to patients, in order to make a distinction. I have read in numerous places that it is best to think of living until we are dead. If we don’t then we could get depressed or think that our life is over as soon as we admit to dying. Think about it this way. “Dying,” an active tense word, is very different from the words like “dead” (adjective) and “be killed” (passive tense). There is no passive tense of “dying.” It is active, and so there for something we DO. It is something we live in, participate in, and include others in. So how do people want to go about their dying time? This is a good question to ask of people and to reflect on ourselves. We don’t just live until we are dead. These are the people who want to go out in their sleep or want to end their lives prematurely. There is no active participation in their dying there.
For many, unlike our ancestors, being around death and dying can be a very foreign experience. It used to be that loved ones would die at home attended to by family members in the upstairs bedroom. Now it is so often in a hospital or nursing home behind closed doors. The announcement comes from the RN or the doctor and the family comes in after a person has died. So many are not familiar with the signs of dying. They think a dying person may be on the road to improvement when they wake from days of sleeping and not eating and want to tell stories. These moments of clarity are often part of the dying process. Dying also is a very personal experience, different for each person, and something that each person can only go through once. If a dying person doesn’t share what it is like with their loved ones, they offer little of help to the next generation when it is their turn. But people are afraid of causing too much hardship to their loved ones by talking about it too much.
Dying in the hospital is very difficult because health care professionals are trained to cure, to heal, and to “fix.” In and of itself, this is not a bad thing at all. But when it comes to dying, there is no “fixing.” I have heard doctors say that having a palliative care team meet with a family is “giving up too early.” I have seen many many times doctors and nurses shy away from using the “D word” with families when the writing was clearly on the wall. Many will say a person who is accepting their dying is “giving up” or someone who is feeling sad about saying good bye is “depressed.” Too, too often do doctors trying treatment after treatment until a patient, who wants to die at home ends up unconscious while still hoping along with their family that they are going to “pull through.” Or a patient holds off going home on hospice because a doctor or social worker feels trying out rehab first might be good, only to die the next day at the nursing home. I tell patients if they want to be an active participant in their dying experience, join hospice while they still have the capacity to choose for themselves.
If we can just begin to see how much death is a part of life. Dying is not a “bad” thing. It is a beautiful, sacred, natural thing. Not to say it is a “good” thing either. It just is. It is part of what happens to all healthy, mature, and connected to the earth beings. Going from living to dead is going around this natural process. As Stephen Jenkinson wonders, “How connected is someone to their life when they have to be told they are dying?”
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