I entitled this piece for a reason. I’ve been thinking a lot about tempering lately. I think there used to be a time when I felt it…… Read more “Quite literally, Ups and Downs”
Tag: muscular dystrophy
“Coping” as a couple
I like this photo, because it was taken in a good moment. I can’t even say, a good day, because our ebbing and flowing these days does…… Read more ““Coping” as a couple”
Dad’s Duchenne Top Ten
Duchenne (pronounced due – SHEN) muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness.DMD is caused by an absence of dystrophin, a protein…… Read more “Dad’s Duchenne Top Ten”
…And then we discovered our son has a fatal genetic disease
Duchenne. The first time I ever heard the word was when Kat, sitting next to me on the couch, covered her mouth and gasped. “Oh no,” I…… Read more “…And then we discovered our son has a fatal genetic disease”
