This is not necessarily about all we have experienced with Covid this last year, though with all the events of 2020, it is likely that more and…… Read more “Living in a Difficult life”
Tag: duchenne
“I wish I didn’t have special muscles…”
“I wish I didn’t have special muscles,” Brendan said to me as I struggled to pull both him and his younger brother through the Farmers Market, with…… Read more ““I wish I didn’t have special muscles…””
Quite literally, Ups and Downs
I entitled this piece for a reason. I’ve been thinking a lot about tempering lately. I think there used to be a time when I felt it…… Read more “Quite literally, Ups and Downs”
“Coping” as a couple
I like this photo, because it was taken in a good moment. I can’t even say, a good day, because our ebbing and flowing these days does…… Read more ““Coping” as a couple”
“Let other people say the hopeful stuff”
“Stuff” wasn’t really the word he used. “Let other people say the hopeful shit” was what he said. “You can leave that to them, and then sometimes…… Read more ““Let other people say the hopeful stuff””
