“I wish I didn’t have special muscles,” Brendan said to me as I struggled to pull both him and his younger brother through the Farmers Market, with…… Read more ““I wish I didn’t have special muscles…””
Tag: duchenne
Quite literally, Ups and Downs
I entitled this piece for a reason. I’ve been thinking a lot about tempering lately. I think there used to be a time when I felt it…… Read more “Quite literally, Ups and Downs”
“Coping” as a couple
I like this photo, because it was taken in a good moment. I can’t even say, a good day, because our ebbing and flowing these days does…… Read more ““Coping” as a couple”
“Let other people say the hopeful stuff”
“Stuff” wasn’t really the word he used. “Let other people say the hopeful shit” was what he said. “You can leave that to them, and then sometimes…… Read more ““Let other people say the hopeful stuff””
Dad’s Duchenne Top Ten
Duchenne (pronounced due – SHEN) muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness.DMD is caused by an absence of dystrophin, a protein…… Read more “Dad’s Duchenne Top Ten”
